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CÉRGE – Story of inclusion (Jackson)
AT AQUAPULSE
December 15, 2023
JACKSON MEETS CéRGE
Life with a toddler is hard, life with a toddler with a disability with limited communication and mobility requires lots of planning and organisation.
Today I introduced my little mate Jackson to Cérge at AquaPulse. Jackson has a genetic disorder called IQSEC2, this means Jackson has intellectual and gross motor delays and associated Epilepsy.
He is currently in a wheelchair, non-verbal and has frequent seizures, including where he will drop all of a sudden and sometimes he will stop breathing for a short period of time. This can be something we are use to and also something that can be terrifying depending on the situation.
The anxiety associated is really hard, we need things to move fast and seamlessly to make things as best as possible for us as a family. We wanted to take Jackson to the Aquatic Centre but as you can imagine going swimming and the risk of a seizure is pretty scary.

All you ever needed as a parent or caregiver is to see that smile, you know the one where their eyes glisten as their mouth moves as wide as it can. Where you know they are in utter excitement and ecstasy in that very moment.